Question:
Western medicine has only been around for a couple hundred years, the western medical establishment have some audacity calling Chinese medicine non-traditional or alternative. If acupuncture is not used much for MS, it is because in China MS is practically unheard of. The Chinese diet promotes health and balance. I have had MS for nearly ten years. Three months ago I made a switch in my diet to traditional Chinese herbal foods. The relief of my symptoms has been so dramatic, that many of my friends and family are also starting to modify their diets. Todd Garfield In article <199610121844.OAA18…@mime3.prodigy.com>, KELLY SWANSON – Hide quoted text — Show quoted text -<PRLJ…@PRODIGY.COM> wrote: >Paul wrote…. . Now what about this accupuncture treat >-ment? I once checked into that and was told that it could not help >MS – >that acupuncture was only for pain – or is that why you are going >that route? > Paul Eberl >********** >Acupuncture has been of tremendous help to me. It is for much more >than pain. It is to get your system working in balance and with MS >your system is out of balance. Find someone who has been trained >and hope you will notice a difference. >K
Response:
My first MS attack was nine years ago. I was in hospital for three weeks and had steroids in tablet form – bad withdrawal symptoms, I was very sick! I tried a crash course of acupuncture for about eight weeks, as I had an important job deadline. It worked wonders, and I made the job O.K. and had nine years total remission. I relapsed this last June with little warning and again had steroids, this time straight in my arm. Wow! no withdrawal sickness at all! I tried acupuncture, but had a second relapse, and had more steroids. Three months on and I still have to walk with a stick, as I still have trouble with my right side. I am certainly planning to try acup. again. I have found the Kombucha mushroom a great help this time around. Jim
Response:
Paul, i am going for help with all the pain I have. it is being used along with hypnosis and emotional therapy. none of these tx will cure my MS, but so far have helped my attitude, and how I feel having this "thing called MS". the hypnosis has helped my pain greatly, as well as my way of looking at life. As far as accupuncture, it was my first tx. He said he was going to start slow, i had a very thin needle placed in both ankles, shins, and both wrists. then helped them by placing electrodes on the needles. there was no pain. he first had asked me to rate my pain in the spots i usually have the most pain, it was an 8 or 9. when he was through. the pain and burning that was in my knees was almost, maybe a 4. but they were still stiff. since he didn’t go to deep into it the first time, the other spots still hurt greatly. I still had to do the bride of franenstein walk out to my car. nevt time, fri. he said he will be doing a more in depth one. i will say it made me a little woozy, so it was a while before they let me up. I figure if these tx i go for won’t hurt me, and if they help even only a little, then they are worth it. To me i find it better than trying experimental drugs, believe me i’m not critisizing anyone who tries them, but with my history of severe drug allergies, these things seem by far the safest for me, and they seem to work. AM 10/12/96 -0400, you wrote: >s_guziejka wrote: >> I had another seizure, first in months, but feel most >Sorry to hear about your seizure, Sue. Now what about this accupuncture treat >-ment? I once checked into that and was told that it could not help MS – >that accupuncture was only for pain – or is that why you are going that route? >Hope you enjoy the fall folliage festival! > Paul Eberl
__..–”“—….___ _…_ __ /// //_.-’ .-/"; ` “<._ “.”_ `. luv and meow ///_.-’ _..–.’_ `( ) ) // // susan / (_..-’ // (< _ ;_..__ ; `’ / /// / // // // `-._,_)’ // / “–…____..-’ /// / // Dreams are the touchstones of our characters. Thoreau (1817-1862)
Response:
At 11:41 AM 10/12/96 PDT, you wrote: >I have heard acupunture can help us from a few people in the MS Newsgroup.
If you have time would you mind telling me how it has benifeted you? Thanks in advance.. I will repeat the same response i gave to Paul, just in case something goes weird at least one or both of you will have my response. As far as accupuncture, it was my first tx. He said he was going to start slow, i had a very thin needle placed in both ankles, shins, and both wrists. then helped them by placing electrodes on the needles. there was no pain. he first had asked me to rate my pain in the spots i usually have the most pain, it was an 8 or 9. when he was through. the pain and burning that was in my knees was almost, maybe a 4. but they were still stiff. since he didn’t go to deep into it the first time, the other spots still hurt greatly. > I still had to do the bride of franenstein walk out to my car. > nevt time, fri. he said he will be doing a more in depth one. i
will say it made me a little woozy, so it was a while before they let me up. > I figure if these tx i go for won’t hurt me, and if they help even
only a little, then they are worth it. To me i find it better than trying experimental drugs, believe me i’m not critisizing anyone who tries them, but with my history of severe drug allergies, these things seem by far the safest for me, and they seem to work. but hopefully I’ll have more to report on the positive effects after a few more TX. and I am thinking POSITIVE because all the pain I’m in doesn’t for easy living. take care __..–”“—….___ _…_ __ /// //_.-’ .-/"; ` “<._ “.”_ `. luv and meow ///_.-’ _..–.’_ `( ) ) // // susan / (_..-’ // (< _ ;_..__ ; `’ / /// / // // // `-._,_)’ // / “–…____..-’ /// / // Dreams are the touchstones of our characters. Thoreau (1817-1862)
Response:
Hi! At 11 41 12/10/96 PDT, you wrote: >I have heard acupunture can help us from a few people in the MS Newsgroup.
If you have time would you mind telling me how it has benifeted you? Thanks in advance.. I went weekly for at least 6 months and the only effect whatsoever was a lightening of my wallet. I have great weakness down the right side and need a wheelchair for all but a few steps so improvement would/should have been noticed if any occurred. Best wishes, Martin Lee (YLee on FIBS) "Look on my dice, ye Mighty, and DESPAIR!" voice mail: 01535-670368 mobile – esp. weekends! 0831-493440 75 Cartmel Road Keighley West Yorkshire ENGLAND BD21 2JB
Response:
jim…@cix.compulink.co.uk ("Jim Matthews") wrote: >My first MS attack was nine years ago. I was in hospital for three weeks >and had steroids in tablet form – bad withdrawal symptoms, I was very >sick! I tried a crash course of acupuncture for about eight weeks, as I >had an important job deadline. It worked wonders, and I made the job O.K. >and had nine years total remission. I relapsed this last June with little >warning and again had steroids, this time straight in my arm. Wow! no >withdrawal sickness at all! I tried acupuncture, but had a second >relapse, and had more steroids. Three months on and I still have to walk >with a stick, as I still have trouble with my right side. I am certainly >planning to try acup. again. I have found the Kombucha mushroom a great >help this time around. >Jim
Jim & Gang Don’t know who your neurologist is but you should find another for a second opinion before using more steroids. IV steroids should not be used more than once every six months and, optimally, once a year! There are too many internal side effects that aren’t seen until later. Ask me!!! I have degenerative bone disease with spontaneous fractures. In other words, you don’t have to do something like fall to fracture something. Fractures can occur with just normal movement. I have diabetes that requires insulin to control. I have pain all the time in my spine because it is begining to crumble from the bone disease. All of this from overuse of steroids early in my MS treatment. Now "they" seem to know better. Or at least most of them do. From each relapse, it is possible to recover some use of lost function and never recover all of it. It is possible to not recover any lost function and it is possible to recover all of it. Each of us varies and, in addition, we vary with each relapse. Also RR disease can change to another form of the disease. Why all this occurs is not known. I do hope you continue to recover. You will need to learn how the changes in your body will affect your life and make adjustments accordingly. I would suggest you seek the assistance of a support group, your society or a counselor that is familiar with what MS does to the various areas of life for assistance. It will be much easier than trying to do it without the understanding of people who have been there or have studied extensively. We are always here to be of assistance. L
Response:
Haven’t posted in quite awhile, but this thread ’bout accupuncture struck a cord. A month ago, after condescending to my wifes concern about my getting the Intrathecal Liorsel Pump, I agreed to try the tiny needle route. The accupuncturist asked the same questions, put the needles in the same places <plus both ears>, then turned down the lights, put on some relaxing music, and said "relax and I’ll be back in 20 minutes". After 20 minutes he returned, removed the needles and said "I’ll see you in a week". N O T I asked him how much education he had and he said a bachelors degree. Well…I’ve got a BS, my son has a BA, and the guy’s got a BQ..BACHELORS OF QUACKERY! IAW…it aint for me. Dave – Hide quoted text — Show quoted text -_guziejka <s_guzie…@MAIL.CONKNET.COM> wrote: > Paul, i am going for help with all the pain I have. it is being >used along with hypnosis and emotional therapy. > none of these tx will cure my MS, but so far have helped my >attitude, and how I feel having this "thing called MS". the hypnosis has >helped my pain greatly, as well as my way of looking at life. As far as >accupuncture, it was my first tx. He said he was going to start slow, i had >a very thin needle placed in both ankles, shins, and both wrists. then >helped them by placing electrodes on the needles. there was no pain. he >first had asked me to rate my pain in the spots i usually have the most >pain, it was an 8 or 9. when he was through. the pain and burning that was >in my knees was almost, maybe a 4. but they were still stiff. since he >didn’t go to deep into it the first time, the other spots still hurt greatly. > I still had to do the bride of franenstein walk out to my car. > nevt time, fri. he said he will be doing a more in depth one. i >will say it made me a little woozy, so it was a while before they let me up. > I figure if these tx i go for won’t hurt me, and if they help even >only a little, then they are worth it. To me i find it better than trying >experimental drugs, believe me i’m not critisizing anyone who tries them, >but with my history of severe drug allergies, these things seem by far the >safest for me, and they seem to work.
Response:
Kenny Howard wrote: > Since I am no longer in denial about having having MS. I have a 5 year old
son that I wonder if it’s known if he will get MS when he’s older? All of the authorities state that MS is NOT hereditary, but acknowledge that there are cases of occurances within families. I believe statistically the chances of it being passed on is 1-2%. Paul Eberl — Your MIND is what and who you are, NOT your BODY!
Response:
Paul/Joyce Eberl wrote: > Kenny Howard wrote: > > Since I am no longer in denial about having having MS. I have a 5 year old
son that I wonder if it’s known if he will get MS when he’s older? > All of the authorities state that MS is NOT hereditary, but acknowledge that there are > cases of occurances within families. I believe statistically the chances of it being > passed on is 1-2%. > Paul Eberl > — > Your MIND is what and who you are, NOT your BODY!
Hi. I live in Alberta. I go to the MS clinic in Calgary, Alberta. They are studing herity and MS plus the area I was born and now live (Crowsnest Pass) has a very high incidence of MS patients. I am adopted by my father. I have a full sister and a half sister. My full sister has 2 children by 2 different husbands and I have endometriosis and was unable to get pregnant so I have 2 adopted children. (an assortment of children!!!!) Because of this they are studing and will keep track of the 4 kids-17(neice), amost 16-son, 13-daughter, and 7 (nephew). This make me feel good because if any should have problems, they will be checked. They will watch all 4 due to enviornment because all live here, they will watch neice and nephew due to family, and mine for environment. Needless to say they were very happy to have my family due to the members! Always knew something good should come from our mixed up background!!! Thats all for now. Linda eas…@canuck.com
Response:
At 07:56 PM 10/20/96 PDT, you wrote: >Since I am no longer in denial about having having MS. I have a 5 year old
son that I wonder if it’s known if he will get MS when he’s older? SNIP Kenny, The latest research suggests that it take a combination of several genes along with an outside trigger for MS to develope. The statistic I have seen quoted is a 2% chance of MS being passed along to one’s children. You can pass along some or all or none of the necessary genes, but it is not likely that they will all be passed on to your children. I am also the only one in my family to have MS. I am not too worried about my children getting it. I guess to me there are other things that they will face in their liftime that concern me more than the possibility of MS. CL Spuhler _________________________ | ~ ^ ^ | Cheryl and Dana Spuhler | ~ ()() /( | spuh…@bright.net | ~ / / | / ( | Beware of Dragons | ~00/ | |___/ ( | | ^^ | ( | |____________________(___|
Response:
At 08:54 PM 10/20/96, Kenny Howard wrote: >At 07:56 PM 10/20/96 PDT, you wrote: >if he will get MS when he’s older? My neoro tells me that MS is not
directly genetic >but I noticed that a few guys in my home town that have MS that their daughters have it >also. I am a little confused by the doctors telling me this cause it kinda looks like >it is inhereted but on the other hand no one in my family has MS in the past or >presenty but me. Hi Ken Found this research page on Genetics for you that was completed July 30/96 http://www.mssoc.ca/med9607b.html Hopefully it’ll make you and a lot of others rest more easily. ;~):-);~) Walt in Winnipeg, MB., Canada ————————————————————————— — Crutch’s Corner http://www.cris.com/~Debwalt ————————————————————————— — GRAPELINE <grapel…@evl.eecs.uic.edu> ————————————————————————— — GrapeVine http://www.cris.com/~Debwalt/gsx/gsx.shtml ————————————————————————— — Walt | Nothing Left to lose <debw…@concentric.net> | May the Force be with You Winnipeg, Manitoba, Canada | Live Well and Prosper ————————————————————————— —
Response:
- Hide quoted text — Show quoted text -Easton wrote: > Paul/Joyce Eberl wrote: > > Kenny Howard wrote: > > > Since I am no longer in denial about having having MS. I have a 5 year old > son that I wonder if it’s known if he will get MS when he’s > older? > > All of the authorities state that MS is NOT hereditary, but acknowledge that > there are > > cases of occurances within families. I believe statistically the chances of it > being > > passed on is 1-2%. > > Paul Eberl > > — > > Your MIND is what and who you are, NOT your BODY! > Hi. I live in Alberta. I go to the MS clinic in Calgary, Alberta. > They are studing herity and MS plus the area I was born and now live > (Crowsnest Pass) has a very high incidence of MS patients. I am adopted > by my father. I have a full sister and a half sister. My full sister > has 2 children by 2 different husbands and I have endometriosis and was > unable to get pregnant so I have 2 adopted children. (an assortment of > children!!!!) Because of this they are studing and will keep track of > the 4 kids-17(neice), amost 16-son, 13-daughter, and 7 (nephew). This > make me feel good because if any should have problems, they will be > checked. > They will watch all 4 due to enviornment because all live here, they > will watch neice and nephew due to family, and mine for environment. > Needless to say they were very happy to have my family due to the > members! Always knew something good should come from our mixed up > background!!! Thats all for now. Linda eas…@canuck.com
Hi…concerning hereditary questions you might want to check out this website: http://pages.prodigy.com/XKHW53A/bottie2.htm
Response:
GTE/elliott wrote: > Sarah, > > my master’s project at umass dartmouth (massachusetts) in professional writing > > has allowed me to learn the fineries of getting ideas across. > > part of the project is interviews w msers – there are 14 fairly short questions, > > and i would love it if any msers would e-mail me for it. > Send it on, I would be more than happy to answer them! > JoAnn
I too would answer it. Linda eas…@canuck.com
Response:
hi everyone – i’ve been lurking for a couple monthes, partly because i’ve been real busy w graduate school and partly because i wanted to get a feel for the listserv. my master’s project at umass dartmouth (massachusetts) in professional writing has allowed me to learn the fineries of getting ideas across. part of the project is interviews w msers – there are 14 fairly short questions, and i would love it if any msers would e-mail me for it. i’ve ‘paid my dues’…i mean, i’ve had the lovely disease for 16 years. i use a cane and electric chair to go to school-work for a couple hours in the am-have been married to a supportive guy for eight years, but don’t have kids. i think i would have liked some, but it just hasn’t happened… best, sahree x x x // Sarah J Moran x (xoxx. P O Box 3352 xxxxxxxxxxxx Westport, MA 02790 xxxxxxxxxxxxx xxx xx xx xx AKA xx xx xx xx sah…@ici.net, smo…@umassd.edu, smoran4…@aol.com
Response:
Yes Please send me a copy to fill out for you. I have had MS for 12 years. I am no longer able to walk so use a Rascal to get around. I am married to a very supportive guy also. We just celibrated our 24th aniversary. We have 3 children and 1 grandchild. A fellow MS’er Mary Ann On Tue, 22 Oct 1996 15:23:33 -0400 Sarah Moran <sah…@ICI.NET> writes: – Hide quoted text — Show quoted text ->hi everyone – i’ve been lurking for a couple monthes, partly because >i’ve >been real busy w graduate school and partly because i wanted to get a >feel >for the listserv. >my master’s project at umass dartmouth (massachusetts) in professional >writing >has allowed me to learn the fineries of getting ideas across. >part of the project is interviews w msers – there are 14 fairly short >questions, >and i would love it if any msers would e-mail me for it. >i’ve ‘paid my dues’…i mean, i’ve had the lovely disease for 16 >years. i >use a cane and electric chair to go to school-work for a couple hours >in the >am-have been married to a supportive guy for eight years, but don’t >have >kids. i think i would have liked some, but it just hasn’t happened… > best, sahree > x > x > x // Sarah J Moran > x (xoxx. P O Box 3352 > xxxxxxxxxxxx Westport, MA 02790 > xxxxxxxxxxxxx > xxx xx xx xx AKA > xx xx xx xx sah…@ici.net, smo…@umassd.edu, >smoran4…@aol.com
Response:
- Hide quoted text — Show quoted text -Paul/Joyce Eberl wrote: > Kenny Howard wrote: > > Since I am no longer in denial about having having MS. I have a 5 year old > son that I wonder if it’s known if he will get MS when he’s older? > All of the authorities state that MS is NOT hereditary, but acknowledge that > there are > cases of occurances within families. I believe statistically the chances of it > being > passed on is 1-2%. > Paul Eberl > — > Your MIND is what and who you are, NOT your BODY!
Hi everyone, I was diagnosed at age 40 and my mom traced our family tree back many generations. No ms. We sure do have alot to worry about but I don’t think passing along ms is one of them. Take care, donna
Response:
- Hide quoted text — Show quoted text -Easton wrote: > Paul/Joyce Eberl wrote: > > Kenny Howard wrote: > > > Since I am no longer in denial about having having MS. I have a 5 year old > son that I wonder if it’s known if he will get MS when he’s > older? > > All of the authorities state that MS is NOT hereditary, but acknowledge that > there are > > cases of occurances within families. I believe statistically the chances of it > being > > passed on is 1-2%. > > Paul Eberl > > — > > Your MIND is what and who you are, NOT your BODY! > Hi. I live in Alberta. I go to the MS clinic in Calgary, Alberta. > They are studing herity and MS plus the area I was born and now live > (Crowsnest Pass) has a very high incidence of MS patients. I am adopted > by my father. I have a full sister and a half sister. My full sister > has 2 children by 2 different husbands and I have endometriosis and was > unable to get pregnant so I have 2 adopted children. (an assortment of > children!!!!) Because of this they are studing and will keep track of > the 4 kids-17(neice), amost 16-son, 13-daughter, and 7 (nephew). This > make me feel good because if any should have problems, they will be > checked. > They will watch all 4 due to enviornment because all live here, they > will watch neice and nephew due to family, and mine for environment. > Needless to say they were very happy to have my family due to the > members! Always knew something good should come from our mixed up > background!!! Thats all for now. Linda eas…@canuck.com
Hi…concerning hereditary questions you might want to check out this website: http://pages.prodigy.com/XKHW53A/bobbie2.htm
Response:
Sarah, > my master’s project at umass dartmouth (massachusetts) in professional writing > has allowed me to learn the fineries of getting ideas across. > part of the project is interviews w msers – there are 14 fairly short questions, > and i would love it if any msers would e-mail me for it.
Send it on, I would be more than happy to answer them! JoAnn
Response:
It has been proven that there is a genetic suseptibility that can be passed on. Your children are at a slightly higher risk than the general population but nothing to be worried about. Check in on the Genetic Suseptibitly studies that have recently come out. My fathers sister had MS and now I have MS but it passed by her children and so far the rest of the extended families children. Athough something I find interesting is that my fathers sisters daughter developed Crones disease. I have been asked with different surveys the MS Clinic does whether there is any Crones disease in the family. Is there a relationship there. They are obviously trying to make one there for some reason. I have four young children so I sure hope this never happens to them, although I am confidend that by the time they grow up there will be a drug-diet regime that will halt or control the disease. Joan
Response:
In article <326CF003.5…@sk.sympatico.ca>, Gordon Ofstie <g.ofs…@sk.sympatico.ca> wrote: >… that will halt or control the disease. > Joan
I’m even more hopeful. I want something–probably whatever a drug will be in the future–that will cure MS. Or even prevent it. There is something that cures Lyme disease if it is caught early enough. It has been, and I’m sure will continue to be, harder to develop from scratch the thing or things that is/are needed to cure MS, but I’m sure it will happen. Some day. Cathe (Browman)
Response:
Easton wrote: > Paul/Joyce Eberl wrote: > > Kenny Howard wrote: > > > Since I am no longer in denial about having having MS. I have a 5 year
old son that I wonder if it’s known if he will get MS when he’s – Hide quoted text — Show quoted text -> older? > > All of the authorities state that MS is NOT hereditary, but acknowledge that there are > > cases of occurances within families. I believe statistically the chances of it being > > passed on is 1-2%. > > Paul Eberl > > — > > Your MIND is what and who you are, NOT your BODY! > Hi. I live in Alberta. I go to the MS clinic in Calgary, Alberta. > They are studing herity and MS plus the area I was born and now live > (Crowsnest Pass) has a very high incidence of MS patients. I am adopted > by my father. I have a full sister and a half sister. My full sister > has 2 children by 2 different husbands and I have endometriosis and was > unable to get pregnant so I have 2 adopted children. (an assortment of > children!!!!) Because of this they are studing and will keep track of > the 4 kids-17(neice), amost 16-son, 13-daughter, and 7 (nephew). This > make me feel good because if any should have problems, they will be > checked. > They will watch all 4 due to enviornment because all live here, they > will watch neice and nephew due to family, and mine for environment. > Needless to say they were very happy to have my family due to the > members! Always knew something good should come from our mixed up > background!!! Thats all for now. Linda eas…@canuck.comHi Paul
I was dx 9 years ago; my father had MS for 27 years, diagnosed when I was born; last year my brother diagnosed….what can I say. Medical research now asserts that 20% of MSers are genetically tied. The worst is dealing with the fear, comparing, …blah…blah…blah…Take care of you in any way you can. Buttercup in Northern Ontario
Response:
I have heard acupunture can help us from a few people in the MS Newsgroup. If you have time would you mind telling me how it has benifeted you? Thanks in advance..
Response:
Paul wrote…. . Now what about this accupuncture treat
-ment? I once checked into that and was told that it could not help MS – that acupuncture was only for pain – or is that why you are going that route? Paul Eberl ********** Acupuncture has been of tremendous help to me. It is for much more than pain. It is to get your system working in balance and with MS your system is out of balance. Find someone who has been trained and hope you will notice a difference. K
Response:
s_guziejka wrote: > I had another seizure, first in months, but feel most > strongly it was brought on by stress. I AOK now. Ialso had my forst > accupunture tx yesterday, but can’t write anymore i have new friends picking > me up with their two young boys to take me to a fall foliage festival. Never > been to one. > so if anyone wants to hear about my accupuncturewrite back and i’ll > tell more.
Sorry to hear about your seizure, Sue. Now what about this accupuncture treat -ment? I once checked into that and was told that it could not help MS – that accupuncture was only for pain – or is that why you are going that route? Hope you enjoy the fall folliage festival! Paul Eberl
Response:
correct me if I’m wrong, but i thought i saw someone right on this list, that because they aren’t as bad as some they shouldn’t post here. well my feelings on that are : doesn’t matter, post here, everyone from mild to severe needs a helping hand from time to time. so whoever you are please make use of this. new topic: I had another seizure, first in months, but feel most strongly it was brought on by stress. I AOK now. Ialso had my forst accupunture tx yesterday, but can’t write anymore i have new friends picking me up with their two young boys to take me to a fall foliage festival. Never been to one. so if anyone wants to hear about my accupuncturewrite back and i’ll tell more. and for those i haven’t yet thanked personally for there support, here it comes THANK-YOU, THANK-YOU, AND thank-you. you are all indeed special to me. have a wonderful weekend. Toodles, Toodles???? __..–”“—….___ _…_ __ /// //_.-’ .-/"; ` “<._ “.”_ `. luv and meow ///_.-’ _..–.’_ `( ) ) // // susan / (_..-’ // (< _ ;_..__ ; `’ / /// / // // // `-._,_)’ // / “–…____..-’ /// / // Dreams are the touchstones of our characters. Thoreau (1817-1862)
Comments